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Help through the final stages
Helping a loved one in the final stages of Alzheimer's disease
Insuring a loved one's final years, months, or days are as good as they can be is not just a series of resource and care choices. Learning to live through grief, celebrate your accomplishments, and honor your loved one's life will shape your emotions and determine your tasks.
Passage through the final stage of Alzheimer's disease is affected by several factors: economics, family and friends, care options, and caregiver resilience. Ideally, the patient's pain is well controlled, interactions acknowledge her remaining emotional presence, caregivers and other family members are supported, and there is time for a calm, peaceful goodbye. Your tasks may include the following:
Partnering to manage pain
Even in the last stages, patients with Alzheimer's disease communicate discomfort and pain. Pain and suffering cannot be totally eliminated, but you can help make them tolerable.
Managing pain and discomfort requires daily monitoring and reassessment of subtle nonverbal signals. Especially when a dramatic decline in functioning occurs, families may choose to discontinue other medical interventions and focus on palliative care for the pain and symptoms associated with dying. With adequate help, this care can be provided at home.
Subtle, behavioral changes can signal unmet needs. Communicating written observations, times, and events to your medical team will provide valuable clues about your loved one's pain status. The soothing properties of touch, massage, music, fragrance, and a loving voice can also reduce pain. Be open to trying different approaches and observe your loved one's reactions.
Connecting and loving
Sharing human kindness through the final stages of Alzheimer's disease takes many forms. Even when patients cannot speak or smile, their emotional memories remain.
Staying calm and attentive will create a soothing atmosphere and communicating through sensory experiences such as touch or singing can be reassuring to your loved one. Contacts with pets or trained therapy animals bring pleasure and ease transitions for even the most frail. Surrounding a loved one with pictures and mementos, reading aloud from treasured books, playing music, giving long, gentle strokes, reminiscing, and recalling life stories promote dignity and comfort all the way through life's final moments.
Caring for yourself
As impossible as it may seem, taking care of yourself during your loved one's final stages is critically important. Research shows spousal caregivers are more likely to experience despair while adult children find fulfillment through their caregiving roles. In any case, it is important to learn how to adjust, feel whole again, and move on
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